View Single Post
Old 09-25-2010, 10:38 AM
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

OK, so this thread is coming out of storage.....

My labs dumped into full blown abnormality. Low K, Low Ca, Low Bicarb. High chloride. Normal anion gap. That equals distal renal tubular acidosis. My arterial blood gases were abnormal. One BMP was normal and the blood gases abnormal, which makes me wonder how long this has been going on and the BMP normal.

Interestingly this ties into vit. d, which last spring, was LOW.

This ties into parathyroid...aldosterone...oh, way too much for my brain. My brain flies out the window when acid-base stuff surfaces, and I have no intention of learning this stuff, if I can at all help it.

My neuro wants me to continue ivig. I disagree....until this is addressed. I am afraid of stressing my kidneys more. ivig can always be restarted-kidney tissue can not be replaced. My cardio wanted me to increase cardizem prior to this issue, now he d'cd. it. Which I agree with.

My rheumie told me I have fibro and she was so nasty last visit in Spring, I declined to see her again. (Fibro with an ANA of 1>1280? and a million abnormal tests??) Other docs say Sjogrens. I need a new rheumie?? I am limited by insurance. Besides what are they gonna do? They don't know manure from shoe polish. They do more harm than good.

GI has been stagnant, and I go vasovagal with intestinal cramping which occurs intermittently (diverticulosis?). Doing nothing is the wisest course, so it's me and my benefiber and my pillow and the bathroom floor...

I pee like a racehorse. I waiver in the wind....and generally feel weak and hung over. I went off all meds except for vicodin 5mg and my
.125mg pramipexole....and K+. So it's not meds.

Something is not right.....I see a nephrologist in a week....ugh....

I knew I wasn't feeling well before this surgery and I should have waited....now I fear the abnormal labs will interfere with bone healing....

I see that dRTA is associated with hypermobility syndromes such as Ehlers-Danlos or Marfans, and I am flexible and one of my kids is almost freakshow material....altho an extremely good athlete.....so, now I am off to medical genetics too...

Ughffff, I opened pandora's box. Where and how the PN fits in is still a question.

I found the end of the earth....it isn't round....I am clinging to it with my fingernails!
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote