Dear kreink -

I at the very least second some of the other replies - you are one of the bravest people I know of, without a doubt.

There are those who swear by gabapentin (neurontin), but I do not. Cannot even imagine being on a dose as high as yours. Have you considered or are you doing supplements as recommended in the stickies? Also Mr. Robot who has answered this post suggests some others such as pomegranate. MrsD has just recommended grapeseed extract to me.

You don't mention the types of tests you need, but if your insurance covers them given your condition, you might want to insist the doc(s) order them.

Don't know how much you would be awarded if you applied for SSI and won, but might that be an option? Your situation definitely seems worthy of receiving it. Then you wouldn't have to worry about having to work full time.

Best wishes,

Sheltiemom