Originally Posted by Mariel

You must be an Aussie, saying "whilst". I have a dear correspondent in Oz who has porphyria like me. Her son's getting married next Saturday and boy is this a heavy time for her, as no one in the family understands her illness.

We have been talking a lot on the porphyria chats about those of us with porph who have the brain scars. We are a minority but we are quite alike.

Mariel