Rach, Has anyone tested you for autoimmune autonomic neuropathy, a.k.a. autoimmune autonomic ganglionopathy?
http://www.nyas.org/Publications/EBr...6-3ddef903e447
http://www.ncbi.nlm.nih.gov/pubmed/10995864
http://www.jneurosci.org/cgi/content/full/24/32/7037
http://www.ionchannels.org/showabstr...?pmid=11474561
http://www.ncbi.nlm.nih.gov/pubmed/19349706
http://emedicine.medscape.com/article/1154266-overview
I had a particularly bad encounter with my neurologist and it put me in a fairly ticked off mood. I decided to put my anger to good use and thought about your situation some more. This is what I came up with.
Your gastroparesis, at least in my opinion, is very telling. Blaming your surgeries for that is kind of like a chicken and egg theory. I think the gastroparesis probably came first. But, of course, I'm only taking a shot in the dark.
I hope you read this. If they haven't done this antibody, get that one doctor who is good to do it. If it's positive, that'll be it - no more making you feel like you're nuts.
I have no idea if this is the answer or not. I had to take a guess at it, for your sake.
Hang in there. I wish you could make it over here for help.
Annie