Quote:
Originally Posted by tysondouglass
Im unsure if im abusing the system.
Last week, i could barely walk to class, or make it up the stairs, or brush my teeth at night, and now that ive had the weekend to rest I feel better, BUT still weak. I assume as the week goes on, ill still continue to have these problems of weakness and I should just go through with the IVIG, the prednisone never has worked FULLY for me, so I guess i just tell my doctor i want IVIG?
I want ot be normal, and im just wondering if im being lame and wanting this even though i dont "NEED" it for a crisis.
Thanks for any help.
Im calling my doc at 10:20 on her cell. Any feedback before that would be helpful.
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This is something I could never understand about this illness.
My patients never call me and say they want to have this treatment or the other. I decide, as their physician, based on the severity of their illness, risk/benefit ratio, as well as their life style and preferences, if they should or should not receive a given treatment.
They can of course agree or disagree, raise their concerns, discuss it with me, or even suggest that I consider another form of treatment. But, I have never met a patient who wants to receive treatment. who in his right mind would want to have needles stuck in their arms, lay in bed, experience possible side effects?
If your MG is not well-controlled with the treatment you are currently receiving, every effort should be done to get your illness under better control, and as long as further treatment does not carry any undue risks or unacceptable inconvenience there is no reason why not to proceed with it.
A patient that goes into a crisis, is a patient who's illness was not managed properly, and there is no reason to wait for this to happen. most crises can be avoided by early recognition of worsening symptoms and prompt treatment.
alice