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Old 09-27-2010, 04:03 PM
PCSLearner PCSLearner is offline
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Join Date: Jan 2010
Location: middle of nowhere
Posts: 158
10 yr Member
PCSLearner PCSLearner is offline
Member
 
Join Date: Jan 2010
Location: middle of nowhere
Posts: 158
10 yr Member
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Hey, Aims! I agree with Mark that this seems very consistant with other PCS folks.

You sound like you live in a relatively rural location (i.e. one doctor moving causing chaos). I do, too, so I thought I might share a few experiences with you.

First, we tried to deal with our local general practitioners for way too long. We should have taken the 250 mile journey to see the neurologist way sooner. Second, if you end up having multiple appointments in a day make sure you schedule the "harder" one second (i.e. more emotional, most confusing, most irritating, etc). Third, and this sounds lame, but make sure you Google map your whole route because you will be processing a lot of information and you don't want to get lost.

Believe it or not, you are still relatively early on in your healing process. But while I'm on an advice-giving-roll, let me share another thing I wish we had done for my daughter. I wish we would have made a list of her exact symptoms and then asked the neuro for a referral to a specialist in each category.

In your case:

Neck injury...Upper Cervical Chiropractor

Eye Issues...NORA-affiliated optomitrist to check ambient vision system

Anger/Depression...endochronologist to check adrenal/pituitary/thyroid function

Anger/Depression...psychologist who knows brain injury (check with your nearest university's sports training staff...they know where to send concussed athletes)

Dizzyness...ear, nose and throat doc to check vestibular system

You get the idea. You might make all these apopintments only to hear, "your fine from this perspective". That's ok, then at least you know that you've covered your bases and you need to let rest, relaxation, good nutrition, and good old TIME heal you up.

I realize you're having troubles finding one doctor, much less several. And I realize this is all expensive. But this is a strategy that might just reveal some therapy or treatment that can help you recover and suffer a little less.

Finally, I'm not sure if you are navigating all of this alone or if you have help. Either way, ask each doctor you see to write down exactly what they want you to do, what they need you to remember, etc. And I'm not just talking about prescriptions or when your next appointment is. If your neuro wants you to see a certain specialist, have him write it down. If he/she wants you to focus on stress reduction, they should write down what they mean exactly. If he/she says, "call me if you don't feel better in 3 months," ask them to write down more specifically what they are talking about.

Also remember that doctors don't also value each other equally. Our neuro was not super thrilled that we were going to see a vision therapist. Make them explain their reasoning to you.

One more thing...feeling unusually cold is (so we've been told) a classic symptom of migraine. You might be in a migraine cluster. I don't know exactly what the heck I'm talking about, but don't leave that seemingly unconnected symptom out when you talk to your doc.

All the best-
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