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Old 09-27-2010, 04:30 PM
scrubbs scrubbs is offline
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Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
Default very different

Hi Neutro,
My neuro took me down by mgs, not percentage. Very different.

My step length has been 20 mg bi-monthly. 120 mg EOD 100, 80,60, 40, 20.
But last visit he he took me down to 15 mg EOD.

That is when I started expieriencing excessive fatigue. I took 20 mgs 2 days in a row and started feeling better. A return call from my neuro informed me that 5mg. could make a dirrerence and to stay on 20 mg EOD til my next visit.

I do not know if I would have felt better if I stayed on 15mg.

My improvement has been slow and I never expierienced anything remarkable
like I have read on this site. Like a dramatic improvment after a infusion or after taking a single 60 mg tablet of mestinon. So this was wierd.

Annie,
In retrospect;
I can be fatigued and not sleepy tired.
I can be fatigued and sleepy tired.
I can be sleepy tired and not fatigued.
There is no doubt in my mind that it's MG and I now realize that every time I have mentioned fatiuge to my neuro he knew exactly what I was talking about.
It's just plain muscle fatiuge from the disease.
No doubt.

Thanks guys;
Tony
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