http://www.marfan.org/marfan/2407/Find-a-Doctor

Or ask these guys who might be an expert in your area!

Nothing is farfetched when you are trying to solve a medical puzzle.

There are usually places at Universities where they test for genes like that. That's a good idea, Alice.

I hope whatever is going on that you can figure it out. Don't rule anything in or out until you know for sure!

Annie