Originally Posted by AnnieB3

Hi, Mike. Can you say where the first test was sent? I would personally trust the Mayo result since they invented the darn test and have tested more patients than other labs. Was it the binding antibody that came back positive? They normally do binding, modulating and blocking all at once. I had the same situation with Quest Diagnostics, with blood being sent there (negative/borderline) and then to Mayo (positive).

Have they done a chest CT yet? If not, you may want to discuss that. If you start to have more involvement of the rest of your body, especially breathing, you should go back to see your neuro. Now might be a good time to see a pulmonologist to get baseline readings so that you know what your "normal" is just in case your breathing tanks.

I hope the appointment goes well. Write down a bunch of questions to ask. The biggest thing with this disease are the "what ifs." Good luck.

Annie