As said many times before, cannot tolerate the gapapentin, Lyrica, Pamelor etc. meds even at low doses.

Therefore, must rely on the supplements as recommended here and gradually eliminating the different gluten foods. Don't know if one or either of these attempts will ever kick this thing in the slats for good, but worth a try.

Non-length dependent is rare, but so far have not found that mine has gotten worse - if anything, better than it was. But what a wacky thing this is! Never could have imagined such a thing existed.