AnnieB3, yes I have a really great pulmo thankfully. He was the one who said you need a really good neuromuscle person after he saw the results of my pulmonary stress test in Feb of 08. But my internist wanted to have me yet see a cardiac doc again for the minimum at least. This was my third go round with a cardiac doc since 2004. That was who I was first sent to about the breathing prob with chest aching and weakness. But my heart is always fine. I have all the tests possible.

My pulmo doc is the head of the pulm lab and one of only 2 docs I have ever had that will listen and admit they would like to do some research. He did this when I said I wondered is my Sjogrens was affecting my breathing. I just miss the initial response I had from the mestinon. It fixed my breathing in such a major way. Over the last 2 years I developed an intolerance to it. I can only take smaller amounts now. My frustration comes out in this regard. I still have a kernel of hope tho that I will have that better breathing again one day. 95% is certainly fine per se but I was working harder to breath that day and I just wish it showed up more clearly. My pulmo said he has some new ideas about how to test me when I come in to see the new neuro Nov 2.

Annie59