Hi Annie your answers were great and a big help. I go to ALS Center because they are supposed to be the local "experts" on MG. I feel very lucky to be dignosed in only 3 months. However the credit goes to my wife. She doesn't accept "maybe" "not sure" for answers. She hauled me to 5 different doctors before we started getting answers. We are still thinking of going to Mayo in Flordia or closer would be Duke but my concern is having to travel back and forth every month or two for treatments.
Hour and half to go before my appt.
Mike
Quote:
Originally Posted by AnnieB3
Mike, I'm glad Jennifer got to the point better than I did. Patients with ALS may temporarily respond to Mestinon but they don't usually have a high AChR Antibody level.
Even MG patients who are clinically doing okay can have high antibody titers. There's no easy answer with this stupid disease.
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