Thanks, Lois.

It should also not be used in LEMS or CMS patients. For CMS patients, it should not be used by anyone in their families (CMS runs in families).

Dr. James Howard (UNC - Chapel Hill) has spearheaded this campaign - working directly with the drug company - to put these warning labels on Ketek/Telithromycin and to inform the medical community about it. Many doctors still do not know how dangerous it is.

And I think it's important to point out that this antibiotic is not like the other relatively contraindicated antibiotics for MGers. This one absolutely should not be taken by ANY person with MG/LEMS/CMS. Period. That's directly per Dr. Howard. I would be afraid that someone might think it's just another antibiotic that one MGer could be okay with but another would not. Nobody would be okay with this one.

So be careful about what your docs order for you.

Raechel