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Old 09-28-2010, 11:33 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by Deidre View Post
Wow! You guys are amazing! I can't believe I've waited so long to join a forum. Thank you all so much for your warm welcome and advice. I promise to check it all out! I've peeked at some forums since I've been diagnosed, but was usually scared away by people's horror stories. As I've mentioned, I am right on the edge of accepting my RSD diagnosis.
I am happy to report that I participated in my first yoga class tonight with one of my girlfriends! I was able to do everything! I had to use a towel under my knees for some of the positions and medicated myself before class. I also had to take a short time out at one point. I arrived at the class a few minutes early to introduce myself to the instructor. I wanted to let her know that I have a chronic pain condition that affects my arms and legs. I just wanted to make sure I wouldn't be "called out" if I couldn't do something or had to stop. I have never done yoga before and didn't know what to expect. To look at me you would never know that I was sick. I was probably the most physically fit person in the class, besides the instructor. Boy, yoga really makes you sweat! I was dripping, but that also seems to be part of RSD. I have a hard time tolerating very hot weather and winter is the absolute worst! I live in NJ, but feel that I should probably become a "California Girl!" Warm, low humidity days, cool nights and beaches. The beach has always been my "happy place."
Thank you all again and I'll check in again soon!
Hi Diedre, Welcome, although sorry for the reason you are here. I, like yourself, am so grateful for the compassion and support here. It's amazing the accumulated knowledge and helpful informaion we receive here and can also share.
I've been seeing a NY Dr. for the past 6 years, he moved to Scottsdale from NY and is very knowledable. He attended school At Cornell, Mt Sinai, and Pittsburg. He is a neurologist, internist, pharmacologist, psychiatrist, and now board certified with the anti-aging medicine and has two HBOT, which has helped some RSD patients. Yesterday we talked about ketamine and he has been researching it and is very pro-active in supporting it. He teaches, does trial studies for pharmaceutical companies and into research and reading of trial studies.
Diedre, I apologize, I started my letter to you, too late in the evening, so will need to finish tomorrow. Hope you have a restful evening. Take care with soft hugs, loretta
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"Thanks for this!" says:
gabbycakes (09-30-2010)