Quote:
Originally Posted by daniella
Hi I am sorry your husband is struggling. I know this also has an impact on you as well. You are a good wife to research and support him. There are many other meds to try so I would suggest your husband talking to his pain doc about trying others that could give him relief but also allow him to function better. Has he looked into other types of treatments? That I would suggest as well. How does he feel his pain doctor is? I have tried so many meds like neurontin etc. Some it was about finding the right dose and gradually increasing. Some were not the right med for me. It does take time.
As for the approach with your husband I guess I would encourage you to ask your husband how you can help him. I know this impacts you too and I know when my pain is high I am not pleasant to be around. I do feel when someone asks me what I need from them and does not push me that works better. Everyone is different of course but I feel that rsd and the pain makes me feel like I have no control of anything so in the ways I can have some control it makes me feel better. Is your husband on board or able to also take initative in researching what may help him? On the days he feels up to it it may help him feel better about having a plan in getting to a better place. Hope I made some sense. I am going on lack of sleep for many days. So sorry if I am not. Wishing better times for both of you
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Good morning....
I can not share much insight on the medicine inquires as I am not able to take medicine for my RSD pain... I have a very bad tummy so I am cold turkey RSD..Some call me strong..I call me crazy!! But I would like to say this control feeling is big..RSD robs us of so many things in our lives...our health, our future as we once thought of it, our friends and families (at times), our livelyhoods, our $ flow, our control and decisions of what we would like vs. what we need to do, we are driven by our pain and RSD..daily and always!! I wonder if your husband was more involved on the pill planning.. educating himself on RSD (online reading).. walking himself thru this illness then teaching others around him about RSD AND how he fits into this disease, take ownership of it..it may be less stressful for him and less on you for being the 'bad girl' in the long run....Kinda approaching it from a different angle.. This is no pun to our men but as women we are natually the neutraers.(bad spelling, sorry).. we want to fix...!! Our families, our lives....but this can't be fixed nor cured only managed..mostly it has to be by the patient..only we know the extent of our pain and feelings..No doubt this disease throws a huge monkey wrench into our lives and those we love..it is such a strange twist on life..one we hold at an arms length in accepting but in time we all have to accept it and try our best to live with it the way we the patient can..mold it into the 'new' us!
Iam so sorry for you and your husband..We can all relate here..We are family and are waiting in the wings to help you!!!
Hugz, Kathy
