New Member
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Join Date: Sep 2010
Posts: 1
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New Member
Join Date: Sep 2010
Posts: 1
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Hello Cyclops,
I came upon your thread and felt I should respond.
I was diagnosed with dRTA by the Mayo Clinic about 5 years ago. It is very important that if you do have RTA you get started on meds to get rid of the acidosis. It can have a number of bad effects on your body. If you have this the continued acidosis of your body will continue to damage your kidneys. Have you had any kidney stones? This is what made me aware of the disease. An MRI showed calcified deposits in my kidneys. Please go see a nephrologist. There is a definitive test for dRTA, I dont remember the name but its a timed test regarding the pH of your urine. A urologist is not good enough, mine missed it. Had I not gone to Mayo I dont know how long it would have taken. I cannot repair my kidneys but I take potassium citrate twice a day to regulate my body. The energy level is much better with the medicine. It really drags you out.
As I read your post I could really sympathize. Not long after the RTA diagnosis I was diagnosed with Fibro, possibly CFS, and now have Sjogrens.
I take a number of meds and go to a weekly message (muscle ) therapist once per week. I often feel crummy but am functioning. Not nearly at the level before my illnesses but I wont give up my life for this.
Good luck - see a nephrologist. Please.
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