Hi Lori,
I don't have CRPS but my husband does so I can relate to how he may be feeling. One thing that I have just recently done is to start posting on this site...I cant tell you how much all the advice and warm wishes help. I know that from my point of view...all I wish is for my husband to be comfortable. It hurst us to have to see you all go thru this and not be able to help it go away, I feel helpless sometimes. Sounds to me like you have a very special, kind-hearted husband. When Im feeling really frustrated and overwhelmed it really helps when my hubby gives me a big hug and expresses how gratefull he is for everything I do. Our whole life has changed too...he doesn't like going out anymore and when there is too much activity in our house he gets anxiety. That makes it hard especially because we have a 13,9 and 3 yr old...nothings quiet about a precocious, rambunctious 3 yr old!
So has life changed? Yes..it has. Money is tight, we cant go out like we used to, the kids fight more, DH and I fight more, sex isnt the same, nothing is the same and sometimes I get very angry and depressed that this happened. But I , just like your husband Im sure, am not mad at my hubby. I am ****** that this disease came into our home..its just not fair.
Quote:
Originally Posted by lorigood243
Hello Friends
Its one of those days....I have had internal RSD for 5 years that has me mostly in bed all day. My care taker is my husband of 28 years. We use to have such an active life before this struck me following gallbladder surgery. I was just diagnosed with RSD 3 months ago and finally have better meds so Im not in constant pain, but it hasnt helped me be free enough to walk well. Oh i also have 75lbs of edema on the right side of my abdomen and now within the past 2 weeks, my left forearm has started to swell. I know RSD may worsen over time...Im not ready to accept that. Its too overwhelming. What can be worse than being stuck in bed at age 48? Well at least im not stuck in bed in constant pain anymore...so thats a blessings! I work from home selling office supplies. I had been doing this for 20 years before I got sick, so i am blessed i have work i can do from home. My hobby is making jewelry for myself and friends and family. I have always been the main bread winner, while my hubby was a stay at home dad raising our twin girls. Now our girls are 19 and off to college. So he is here taking care of me. We lost our home 2 years ago because my income went way down when i got sick. Now that I am out of pain, I am able to work more and hope to get our income back up.
So thats a picture of my life. He is 58 and he is devoted to me and has taken care of me for the past 5 years. He is a loner, always has been and doesnt have any friends. His world is me. He use to have hobbies...but went away after I got sick. He reads alot and watched TV and cleans the house and is a great chef. He doesnt drive because he lost vision in one of his eyes, so we go out about 3 times a week if I drive us, which i fortunately can still do.
Do any of you have a similar situation where RSD has down scaled a great active life that you once had and its just you, your caretaker and RSD? Hubby and I get along great but of course get on eachothers nerves now and then. With all of my health problems there is no chance of having an intimate relationship that we once had. RSD robbed that too. I think hubby is depressed but wont see a doctor about it. I dont feel depressed like i need meds to help me, but Im certainly not happy about my situation. But I dont cry over it i just deal with it, what else is there to do?
Any suggestions on things to do to improve my quality of life for me and especially my hubby? Sometimes when your in the middle of a room full of problems, you cant find the obvious door to open to get a breath of fresh air...
I appreciate your thoughts
Lori
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