Thread: Sleeping.....
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Old 10-01-2010, 03:07 AM
Sheltiemom18 Sheltiemom18 is offline
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
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Invisable and Amit -

Our kind of neuropathy is considered the more "rare" type according to the neuro who did my skin biopsies. However, other members here at NeuroTalk also have the non-length dependent type and know a lot about it (glenntaj for one). Had about half of the EMG testing, and nothing abnormal showed for length-dependent.

So far, mine has not been called idiopathic. Was diagnosed by rheumatology and my PCP clinically with the autoimmune primary Sjogren's Syndrome a month or two after the overnight burning started.

So I guess based upon everything combined I have that are so typical of it, a reasonable Dx would be Sjogren's although the labs for it were all normal. Sometimes it takes years for them to go abnormal. It's not curable.

You describe all the weird sensations so well, Invisable. Sometimes I have them in multiple places, other times not at any. Just curious: I also have itching, do you? Seeing the rheumy on 10/18, and will ask about it as that can also be Sjogren's - so just wondering.
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