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Old 10-01-2010, 05:22 PM
curtz316 curtz316 is offline
New Member
 
Join Date: Oct 2010
Posts: 4
10 yr Member
curtz316 curtz316 is offline
New Member
 
Join Date: Oct 2010
Posts: 4
10 yr Member
Unhappy I have the same issue as Lopi

Here is a letter I sent to someone a little while back reaching out for help:

"I participated in Neurofeedback treatments for TBI research around early February. I had a strange reaction and haven't felt the same since (it has been 4 months). I ended up testing negative for TBI by the way. The protocol was to start by the practitioner reducing delta waves on the right side and then rewarding the left or something. I told him that I was panicking for some reason at the end of the treatment and all the gauges on the computer where maxed out. I also told him prior to the second session that I was anxious since the first the day before. I only did a total of 2 treatments. He mentioned things were changing up there and it would subside. He trained me for 5-10 minutes too long the second procedure (he openly admitted later on). After the treatment, for the next 4 days or so, I had the worst anxiety attacks of my life (I think they were "partial seizure" attacks). It was off and on constantly with all of the symptoms explained above and many more intensified by 10 fold. It was like a roller coaster ride; calming myself down then off into a meltdown seconds later. Anything from looking at a certain shade of light to just about anything else would set it off instantly. I have been also having head pains/sensations in the area where I was trained on the left back part of my head, going down into the neck area. I also have been having problems with my eyes (floaters, flashes, double vision in left eye sometimes, and more), anxiety, seeing images or faces from shapes in things (example: tiled wall/floor & like looking at the clouds enhanced by 20) I had a CAT scan and a MRI both resulting normal (nothing found except a squiggly vein or something, “an anomaly”). I have been taking Lorazepam (anti-anxiety med w/ anti-seizure traits) for the last 2 months, prescribed by the hospital first and now by my Neurologist who is totally confused. When I went to the hospital my blood pressure was high and I was very nervous/anxious with a lot of pressure in the back of my head. My left eye was dilated along with everything else and that’s why I went. I haven’t taken meds for anxiety (or anything really ever) for about 7 years or more and I never planned on taking them ever again. I really had no choice, it was too much to handle. I am desperate for help and saw that you were experienced in psychology along with Neurofeedback. Can you please give me some guidance on what I should do or who can help me?"

I never did get a response back from this specialist...

Well, it has been almost a year now (3 brain scans later (MRI, CT, then MRA)) and they just found an aneurysm in left rear part of my brain. That's almost exactly where the device was placed. I went to a neurosurgeon and he told me that aneurysms don't produce any symptoms. That can't be right because I have pain/strain everyday in the area that they said the aneurysm is. This treatment completely flipped my life upside down. I know, without any doubt, that this treatment caused an aneurysm, increased my anxiety, permanently damaged my eyes, made my existing symptoms worse, made my brain less optimal than before, and put me into a depression. The Neurofeedback technician denies any of it. If Neurofeedback didn't do it, than the reaction to the Neurofeedback did it (if that makes sense). Not only has this ruined my quality of life in so many ways now and for the future, it is costing me big bucks. I lost my insurance because I was on Cobra and then found someone to take me after being denied twice, but at a ridiculous cost. I am paying over $400/month for health insurance because I have a preexisting condition now. I had a few reported symptoms before, but I was paying about $120/month. I am only 27 by the way. I wake up everyday, tormented from this event, because the pain in my head every morning reminds me. My mental health is degrading and I wish someone would just put a bullet in my head sometimes. I can't even get help with my doctor bills. I would consider sometime of lawsuit, but I called around it is too complicated in so many words. My hands are up in the air. Any advice is much appreciated. Not to say Lopi's last words in his story didn't inspire me.
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