Finally got thru to the nurse and explained in detail how the flare was getting worse with my eye and talking/thought process - besides the really jello like legs. So they were able to find room for me to come in for the infusion - 3 day 1000 mg today. Set up for another on Sat and Sun Mornings also and then go on a 14 day taper down prenisone. I am really hoping for some relief. Nurse stated alot of people will notice improvement on their eyes and thought process after just the first infusion. I realize it won't be a snap of the fingers to get back to beginning point as my nueor dr stated she wanted me on bed rest 4-6 weeks to help reset my body since I was in such a "hole" to dig out of.
Do you know if you have to have drs prescription to get the arm brace type of cane? This is my husbands greatest concern is to have me here alone and fall - which I've done. I am just not stable enough anymore with just the cane and our house is not large enough hall size and such for a walker. Thanks again for all your thoughts and help in getting thru this one.
lindkaye