Originally Posted by whisperstothesun

Hello All!
Though I have been living with RSD, non diabetic neuropathy, seizure disorder and post concussion syndrome for over 18yrs now, this is my 1st time joining a forum/support group.
Briefly, I was in an automobile accident in April 1992. Prior to this I was a Classical Pianist preparing for the finals of the Murray Dranoff International Piano Competition in Munich, Germany (similar to the Olympics, but for music). Music is still my passion, but I am too disabled to have an advocation. Instead, I live vicariously through my 1 miracle child, who shares my prediliction for all things music. Though the RSD is at times all consuming, I feel lucky because the accompanying head injury hangover allows me to forget at times!
Actually, my intractable pain is still progressing. Though I'm on High dose long term Opiod therapy, I have still developed cardiac-adreanal insufficiency syndrome. My endocrine system is shot. My pituitary has all but stopped working. I have exhausted all other options for therapy, and have been told by a group of Drs. who did a study on me (18yrs is a long time to live with RSD) that opiods are all that's left. I am not even a candidate for the deepbrain implant. But lately I am more worried about the validity of being able to continue my meds in the current political/medical climate. So I am joining here to make friends, speak out, and seek/provide support to my fellow suffers/survivors. I hope to meet each of you! Please say "Hi", and if I am discovered wandering aimlessly around forums, please remind me that I am an RSD'er with a brain injury and redirect!!!