Thread: Ampyra/4AP
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Old 10-03-2010, 03:33 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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OK, it wasn't a kidney! It was sleep. Who'd have thunk it with me??
It's hard to say whether this is working for me or not.

I am on the go so much anyway, and I am not sure if it is helping or I am just motivated. I am dealing with an upcoming wedding (the DSD is getting married this coming Sunday!), the man's ex-who is trying to drive everyone as crazy as she is, and MORE changes at work.

I'm going to hang for a month and then if I can't tell if there's been a benefit, I will go off it. I figure that if it is working I will be able to tell then!

I still need to learn how to listen to what my body tells me! I've never been good at it! I envy people who can say that they notice this or that. For so many years I just worked through the pain or shrugged off piddly stuff (or what I thought was piddly stuff!) that I tend to dismiss stuff until it knocks me down. (Don't forget I am the girl who had a ruptured appendix for 24-48 hours before I figured out I was going to die and I went to the ER!)

My new mantra is "You are NOT Superwoman!"
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Debbie D (10-05-2010), ewizabeth (10-04-2010), SallyC (10-03-2010), SandyC (10-04-2010)