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Old 10-03-2010, 09:37 PM
fredebassett fredebassett is offline
Junior Member
 
Join Date: Mar 2010
Posts: 10
10 yr Member
fredebassett fredebassett is offline
Junior Member
 
Join Date: Mar 2010
Posts: 10
10 yr Member
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Katielynn,
I don't know if you have seen any of my posts but I do feel for your sister in law. I started 5 years ago looking for help and have crossed paths with many people that have problems with the phrenic nerve nad diaphragm. I had the nerve transplant surgery in March or this year and although I've made some great strides I am still waiting for the nerve to make its connection. This is a 10 -14 month process as the regrowth is very slow and as I've said to many of my friends it sucks to be 6'2'' tall when your waiting on a process like this.

The surgery has changed my life for the good. Although I may never have a complete recovery I can once again do the simple things that many take for granite like lay flat on my back w/o grasping fro air, bend over and tie my own shoes, sleep w/o the aid of a c pap machine walk up multiple flights of stairs w/o stopping for a rest because I'm winded. I played tag with my grand children and surprised the family when I was able to run around the way the remembered.

So don't give up hope! My surgen was Dr Mathew Kaufman and he is located in NJ. He is the only Dr. in my 5 years of searching that was able to help me. Hopefully he can helpher too! You can contact him on the web. They advertise on this site I beleive. They are called advanced reconstructive surgery. He called me and interviewed me over the phone before proceeding to the next step. If he does not believe he can help he will not waste you time.
Good luck - Ross

Quote:
Originally Posted by katielynn88 View Post
Hi,
I am looking for some resources or some advice. My sister in law who is 34 and has 5 children raging in ages from 16 all the way down to 2 had a shoulder injury about 4 years ago. And 2 years ago she underwent surgery to repair some of the damage. while in surgery, the surgeon severed her phrenic nerve. since then she has to be on oxygen 24/7, not only that she also went and had a fairly new procedure done to her called the hemidiaphremic pacser it is a machine that has wires sticking out of your body and it is supposed to help the diaphragm move. well it isn't working. so i have been doing some research on nerve transplant..Has anyone here had the procedure done and if so how are you now? My sister in law is always sick and this is no way to live life especially as young as she is any advice would be wonderful
Thanks have a great day and God Bless
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