My Neurologist mentioned the word Amyloidosis as a possible cause of my neuropathy, which will require more biopsies to confirm. I've decided to seek out a specialist in this area. I'm so scared & confused. I like the Neuro. I'm seeing now but she doesn't seem to get in any hurry to get me answers. And she doesn't seem to know a whole lot about the disease. Everything I've read says the sooner you confirm a diagnosis & begin treatment the better. I don't want to find out later that if my doctor had been more agressive things would have turned out differently.
Maybe I'm over-reacting but I say better SAFE than SORRY!