Quote:
Originally Posted by lefty
Thanks loretta, to answer your questions:
{Lefty, the sweating is one of the 3 major factors of RSD. Skin issues is also another feature for many of us with RSD. Some of us get red skin dots, leisons. Also wanted to mention, keeping a limb casted is not a good thing. we want to keep our limbs mobile, otherwise they become locked. I dailey stretch and exercise so I don't end up in wheelchair, which many are. You many want to check with your Dr. about casting.
Lefty, how do you take your skin temperature????
Lefty, was your injury work related?}
On the subject of casting, and splinting this all was from 08-March 2010. I'm no longer in a cast, or splint.
I took my temp by holding a themomitor in my hand, it seem to work. At the clinic they took it by running a temp probe (the same as they use in the hospital...across your forehead from ear to ear) across the back of both wrist.
My injury is work related, and I do have an attorney working for me.
Loretta early on this I had the sweating on my left hand and forearm. Then after a while it became full body where I had to change my clothes, or night grown. I haven't had any more sweating since the ganglion block.
The only time my skin color changes is during flare-ups. I have notice that from my left forearm and hand is bigger than the right.
I am in Aqua physical therapy, and I see a pain psychologist, and also go to the gym for the warm water work-outs. I just can back from walking around the lake.
Hand began to mildly burn, and swell so I had to cut it short.
As I mention before, this CRPS would be a new case if w/c accepts it. So they are fighting me tooth and nail. This is why on my own, I'm seeing specalist that have dealt with CRPS patients, for their professional opinions.
I did check out RSDSA, and found it helpful. There also was a radio station that feature the founder of RSDSA. I think it was an old broadcast, but I really got a lot out of it. I'm blanking on the guy's name and the radio station. I announcer is a woman with CRPS, but the guy is a social worker, and doesn't have CRPS...just a big heart  ! You might know who I'm referring to.
Thanks again for all your help, by the way I'm 51 and will be 52 in two months. My injury was in 11/08.
 lefty |
Hi Lefty, Thanks for the nice letter and information. Is the man's name Jim Broatch. RSDSA had their annual meeting here in Scottsdale AZ a year and half ago. We had over 150 RSDers and Jim was there along with 5 Drs. Scientist in RSD. We do need as much publicity as possible. I did a lot of physical therapy massage therapy and water therapy. Our heated pool saved one foot from freezing up. My toes curled up and didn't touch floor. My Dr. had me in my pool dailey and told me how to squeeze the toes. 4 months and they were touching the floor again. I have one hand that is like a claw-I had been misdiagnosed and delay of pt didn't allow full range of motion. But I can cut my own food, peel potato. I did desensitization which was a life saver.
I know casting is a no no. I didn't know I had RSD for 4 years and after about 50 pt, they wanted to operate and I said no. I was paying for the 50 massage therapy before each pt. I ended up needing another 50 pt treatments. I call my insurance company and told them, I had seen an ortho surgeon at recommendation of the rehab dr. overseeing my pt. I told them I wanted to continue to do the pt and massage therapy. They said, well we pay for pt. but not massage therapy. I said OK your choice, surgery (and I will still need pt after surgery) or pt and massager therapy. He said just a minute-quickly came back and said we would be happy to pay for the pt and massage therapy
It was frozen shoulder that they were trying to get range of motion back following breast surgery for 2 benign tumors. After I was finished with therapy, the therapist said don't be surprised if it goes to other side. I thought that sounded strange, after a year of remission, it did go to other shoulder and had more pt and massage. I feel the massage helped with desensitization.
Hope the best for you. It's been 15 years of RSD and now full body and internal and I'm 62. Just got started on social security, but denied ss disability and insurance. I can't work and get insurance so am going to get attorney for SSDI. I also have fibromyalgia, trigeminal nerve disorder. ruptured disc in neck causing terrible headaches,diverticulitis, and I am going to get tested for Rheumatoid Arthritis-
Take care, your friend, loretta