I am so sorry for all you have and are going through. I wish I had words to comfort you and your family and to take away your pain. I know it is so hard to hold to hope but you never know what in the future can help your pain and give you relief. Do you feel you are safe cause I am very concerned about you? Please reach out to a professional if not. I am here by email or phone and I know others here are too.
As for your family I know our condition impacts the whole family so I hope that they get support for themselves in terms of possible therapy and reach out to each other.
Sending feel better thoughts.