olecyn,
I have read your statement several times and cannot help but feel the need to congratulate you. You very clearly and concisely summed up my life at least and most of our lives in a few sentences. I think I will print this out and pin it to my wall. You're right this is serious ****! I only hope that physicians understand how serious it is. How much work we do to research our disorder. How much help we give each other here. I know I truly would be lost without all my friends and what I consider family here. So thank you for saying these very concise points!!!
You are a master of linguistic style!
Love and hugs,
Victoria