lily,
yes I do think just what I said to you on phone.
look at it like this for the trial that lead was in great spot. doc may have a reason he moved the position for the final perhaps doc was trying to plan ahead for if things got worse , if the pain spread out so possible he put lead further down or lower. but that is neither here nor there sister. you have tried it the way it has been placed in the final implant for a good few weeks now. you have tried to work with the programs and all the while sucking it up , toughing it out. damn woman you are a warrior in my honest opinion.
and now yes I truly think it is time,, past time , it is over due that you have follow up and a meeting with doc. trust me NO ONE is going to think you are hopeless or complaining!!! first off the doc dose not want to have his work ...his work being you and his first pns he DOSE NOT want this to fail he dose not want this to not be helping you or not work. he wants success as much as you.
YES sister I know of plenty of others who have had the leads adjusted, b.s. yes they take the lead out and restring it for better position yup it is bs but sometimes that needs to be done. if you visit the scs sub forum here at neurotalk you will find others who have had their leads adjusted. as fars as PNS which is different cus it is for the face, head. I can point you to at least 3 others who have had to have the whole stim leads and battery out then put back in later on and all are doing great now. you would probably only need one lead adjusted.
now the longer you wait to bring up this issue the more scar tissue is growing in those areas the more scar tissue the more secure the lead becomes. so the best thing to do is bring these things up and do not fear the doc or med team is going to consider you hopeless and give up on you. trust me they want a good ending just as much as you do . please do not sit there in limbo stuck as you are... bring this up and by doing so you will be making thing move in some type of direction that will lead to getting these issues taken care of . Lily talking about this stuff ..YOU ARE NOT complaining NOT AT ALL. You ARE stating facts, talking truths, being real, showing honesty. and damn it I for one respect admire and find strength by you doing that sister I really do. I am so proud to have met and gotten to know you. I am sorry this isnt doing like it should be doing but it is what it is and I will be here with you step by step no matter which way things go but please do not just sit there with a stiff lip and be stuck okay . cus that my dear sis kinda makes you well it makes you something I KNOW YOU ARE NOT!!!!
I am gonna get a couple others and have them reply cus Lily your NOT alone and I know the worst thing is just doing nothing.
sending healing hugs and positive energy and my prayers to you and yours.
oh yes and thank you for sharing that is what this place is for. true it may have you feeling embarrassed and a hard thing to do but letting it out is healthy and wise and the right thing, a good thing. it really is.
hang in there and make that follow up apt and talk about these issues with doc and rep too. okay? good. off now I am sure another will be by to reply soon.
PEACE
BMW...Tina