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Old 10-07-2010, 07:18 PM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
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jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Lightbulb Very frustrating

Quote:
Originally Posted by grey View Post
But then I think: Congress #2 means there must have been a #1, wonder where it took place?

An example - a group played by real people play acted their role in the life of a new drug from point of discovery to when first available to patient. On stage were a politician, neurologist, pharma, approval authorities (plural), patient organisation and a very pushy patient (Tom Isaac playing himself?). It managed to amuse and anger.
...
Consider for a moment the cast. This was not a cynical play put on by rebellious patients. There is a strong message from these guys that this is unacceptable. They could do better for us.
Grey, WPC #1 was in Washington, D.C. in 2006.

I attended that same role-play that you mentioned. I came away very frustrated, annoyed, and angry by the bureaucracy that is in place to "protect us patients."

Jean
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Jean B

This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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