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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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A sugestion
Why not a strong emphasis on off label use of already approved drugs. Since they have already passed through the hoops, they could be quickly deployed.
We PWP could help by combing the literature. I can give you two examples right now- the Exendin that Tom is probably quaffing as he sits across the table from his "special" gila monster is one. Another is methylene blue that has slipped back into the shadows.
Debi, if you are out there, this is the most cost effective way to bring these new drugs to market.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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