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Old 10-08-2010, 10:54 AM
Tulips Tulips is offline
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Join Date: Oct 2010
Posts: 148
10 yr Member
Tulips Tulips is offline
Member
 
Join Date: Oct 2010
Posts: 148
10 yr Member
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My last vitamin d level was 9. Taking 50,000 UNITA weekly

My symptoms got worse after flu hot in 2003. Before that I had all te stuff but after all hell broke loose. Felt like my legs were set in fire.

I also have trmors. Especially when I wake up or get startled I feel my whole body shaking and vision for a bit.
I always jerked while going to sleep but now it's worse. As soon as I close my eyes something will jerk.

So I know I have motor involvement too. Just don't know what is causing all this

I have a sister with ms. By myri and spinal taps are cleasn.
My mom complains of neuropathy like in hands but she is borderling diabetes.

I am so xonfised what to do next. Have had so many test and tons have been repeated.

No genetic Teating done yet and I just lost my insurance. Also heavy metal test normal.

The doctor says it's obviously ysymatic since it's all over.

Genetic, toxic, autoimmune, metabolic endocrologic ...what could it be.

It all started with sensory stuff when I was 1) and slowly progressed. I have severe cramping now and get rapin spasms and sustained spasms.

I have where my neck goes out for days and remains cramped.

I suffer from severe allergies all my life and grew up with sore throats and infections of it.
Developed eczema during pregnancy.

I never took any Medicines until 2006.
In 2006 stayed in hospital for a week after spinal tap headache. Finally tried lyricxa and zanaflex robaxin! Nothing worked

Now on baclofen and 2 mg Valium as needed but I don't take these daily. Dosent mean that my pain might not bee much then. I cry daily all day but at the same time I am afraid of these meds. I have neurontan sittig here That I haven't tried!

I had doc write me lidoderm patch but he said I can't put it all over so that's not gonna work!

I am so lost and confused I just want tonknow why.

Does this sound like sfn?

My celiac panel o blood was normal too.
I did a cleansing diet with a naturopath for 21 days and no hang and I quit that. He said to stay longer for it to work. He charged me 600$ for visit and supplements!!

I know I have to figure out and come to term with that treat the symptoms for now.

I even get stabs all over my scalp and eyes. My whole face twitches pulls and burns and all.

It's all over. I feel like a lot up Christmas tree that has flickering lights and those lights are the movent of pain.

Any recommendation on medicine.
I bought 600 mg alpha lipoic acid is that good?

Thankyou
Tulips
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