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Old 10-08-2010, 12:59 PM
Cathy Cathy is offline
Junior Member
 
Join Date: Feb 2007
Location: Kingwood, Texas
Posts: 32
15 yr Member
Cathy Cathy is offline
Junior Member
 
Join Date: Feb 2007
Location: Kingwood, Texas
Posts: 32
15 yr Member
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Quote:
Originally Posted by daniella View Post
Hi cathy. I am sorry for your pain. Are you currently seeing someone for the pain? Are you on any meds?
You said after the 5 month something went wrong can you decribe more about that?
You stated you have fibromyalgia have you tried Lyrica which is similar to neurontin?
My thought is with all that is going on to see a doctor. Have you seen a neurologist? If not I would or possibly again with the new symptoms. For me my initial testing with my neuro did not show but then I had more extensive and that dx with me with PN and of course the RSD.
Feel better.
Hi Daniella, Sorry I couldn't get back till now. Let's see: I had been thinking for a while that I might see a neurologist or a rheumatologist for the Fibromyalgia. I do have a pain management doctor that I was going to call, but the flare up has subsided somewhat and I figured I'd better keep those stellate ganglion shots for serious days that may be ahead. I don't remember a lot of what I read, but somehow remember that too many of those shots could end up not being so good. Don't know. I think also that my body is just too mixed up now to start something new. I do a lot of small hand activities at work and it is tax season and that hasn't helped.

I did try Lyrica (hands and feet swelled and gained weight) I stayed on it, but just ended up taking 75 mg in the am. He (PT doc-2005) wanted me to get to 100 mg 3x's a day, but I couldn't. Then I had to see a foot doctor for bone spurs on the top of both feet. He injected me with cortisone in each foot and they swelled and blistered - after 4 days of seeing him everyday he sent me to ER which did absolutely nothing and he won't touch me again. He just thought the whole episode was bizarre and this from a man who said he knew everything about RSD. To be a 'little' fair to him, my family doc also said it didn't present like RSD. So we put it down to an allergy to cortisone...and the list grows.

Recently with my back issues, I went back on neurontin, but it just frys my brain. I believe it's a good medicine, but taking just 300 mg a day, still had me forgetting more than I should be.

As far as the IDD 5th month treatment; I have no idea, but I think there was something amiss maybe with the machine. I thought when I called in he might double check the print out and see if something looked strange, but nothing. So whether or not there is blame I'll probably never know. All I do know is that by the time I got home my back was hurting more than it had in the weeks previous to that visit.

I've seen a cardiologist as my blood pressure was getting higher as well as cholesterol being high. That's genes, but I think the pressure must have something to do with the pain, verified by some of the posts on here and this week my husband is suffering with a bad bout of diverticulitis and his pressure hit the roof.

Loretta, thank you for the welcome and your suggestions. I think I'll wait on the compounding pharmacy for now, but am grateful for your suggestions and offer of help. I know I should be exercising more and looking into the water therapy...but...I just want to crash at the end of the day and just want to sleep on the weekends. My husband has been very understanding, but if and when I do go out on Sat. I'm more bushed than ever.

Oh meds...Currently I take darvon with 3 advil in the morning and sometimes a darvon with 2 advil in the afternoon. When I get home I take a Flexeril and then elavil (10mg) and a anxiety med just so I'm sure to sleep. It's difficult to find a med that agrees with me.

I guess I should end for now with my heartfelt thanks and prayers for your easing of your pains. cathy
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"Thanks for this!" says:
fmichael (10-09-2010), loretta (10-08-2010)