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Originally Posted by debbiehub
Hi all,,,Just tought I would tell you about my trip to doc rhodes in TX. First I have to tell you he in not a quack. He understands RSD more then any other doc I have met. He Vecctor stimulator is doing great things for MD population and some RSDers. While I was there I met 2 RSDers who had great success with his tx. So far, for me it has not worked but I still have the machine and I am plugging away. If it does not work I can return it for almost the full amount. I am glad I went to see him. Now I will know if this is the tx for me. If you want to learn about his theory you can get the book Pain Banishment on Amazon.
I am continuing to deteriorate at a rapid pace, Muscle wasting in just frightening..I dont' know what will become of me and I am very scared...
Debbie
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Hi Debbie,
Thank you for the information on Dr. Rhodes. I am so sorry you are deteriorating with your muscles. Do you have full body RSD? I'm 15 years with full body and internal. I'm working harding on my muscles. For 2-3 months now, am at 2 hours of exercise. It's very slow with weight loss, but is a little progress at a time. I use 1# weights. My Dr. reminded me Monday that swimming was best for me. I used to swim every day and do remember progress. I'm thinking of going back to it.
I know it's scary Debbie. But please don't give up You can make progress. I can't afford it right now, but I used to do massage therapy 1 1/2 hr a week. I know it helped a lot along with physical therapy. Live in Arizona, and when it get's to 80's am going to start walking dailey. Are you mobile?
I have one hand that is crippled-kinda like a claw. Was misdiagnosed, so got pt late.
What do you see to slow down deterioration? I'm doing research for anti-inflammatory foods and vitamins. My Dr. is making up an anti-inflammatory cream for parts of my body that are hot, which indicates inflammation.
Debbie, please know I'm thinking about you along with rest of our rsd family. How long have you had RSD? And when did you notice a faster deterioration of your muscles? Please let us know how we can be of encoouragment to you. Your friend, loretta with soft hugs
