Quote:
Originally Posted by shogan7RSD
Hi every1!
I had carpal tunnel and cyst surgery on my right wrist in Dec '07. I got better for a little bit, but then 6 months down the road I started having pain again in my right wrist. I saw my surgeon and he immediately figured RSD, but sent me to a PM to get a diagnosis. The PM wouldn't give me a complete diagnosis but did 3 nerve blocks in my right arm and 1 in my left. In that time the pain spread up my right arm to my shoulder and started in my left arm till it got from my finger tips to my shoulder. No doctor will give me a comfired diagnosis bc i am missing some key symptoms (like burning pain, which has started recently in small amounts, excessive swelling, sweating and dryness). I know that people sometimes don't have all the symptoms, but my docs are treating me for RSD, and the blocks didn't help me for long, like maybe a day or two.
All my docs say it is good we caught it early, but what good can that do if i am not responding well to the treatments?
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Hi,
In my own opinion in some case like my own, I have CRPS 2, dx RSD and treatment is based on what type you have 1 or 2. PT was not the treatment for me is was only making it worse and it was torture, but until I found the proper doctors it was hell. Now that my RSD is somewhat under control I still have to deal with the 2 part. CRPS 2 is RSD with nerve damage. I had a serious accident had nerve damage too more than just one nerve and have titanium in my arm. So I don't just thinks it's a matter of just the RSD if it was it might be easier to correct. For me my RSD symptoms are still there and flare as a normal RSD person but the PN and the nerve damage is just as bad and very hard to correct.
From what I have read carpel tunnel surgery is a very easy way to get RSD. I would maybe get a second opinon.I have never heard of the acholol test, but think about it, your skin is pourus, if you pour acholol on it if there is one little break in the skin of course it's going to burn? I would question that. Maybe a very good teaching hospital I don't truly trust these pain clinics. Again, only my opinion. I have been through searching for doctors who will give me the right answers or at least be honest and have some real understanding of RSD. Which I did not find right away. But since 2004 to current I am with my same doctors who fixed my arm and the same Pain Managment Spec. I would not change I have to travel into Manhattan which for me could sometime be a 2-3 hour trip one-way due to traffic. If the president is in town I change my appt. I'll just never get there.
So to end we all want to feel better and get back to what life used to be so we have know choice but to trust these doctors. But it's better to wait and find the correct doctor then pick one who says he knows what he is doing and really does not. I came so close to having procedures done by different doctors that would of definitly have made be worse. I think a slow conversative approach is better. Believe me it was hard to think this way in the beginning because my whole life had changed and to be honest I just could not handle it. It was my husband and father would kept saying let's just get one more opinion and that last one was the one. Thank god for family.
Good luck Gabbycakes