Thread: New.. Hello
View Single Post
Old 10-09-2010, 06:14 AM
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default This sounds to me--

--given the systemic presentation, as if there may be a hereditary component, and if not, then some sort of toxic exposure or autoimmune process.

It sounds like you need a LOT more testing--do you have access to a large teaching hospital, or are you relatively close to a specialty center (such as Cornell Weill in NY, the University of California at San Francisco, the Jack Miller Center in Chicago, Massachusetts General in Boston, Washington University in St. Louis Missouri, or Johns Hopkins in Baltimore)? Could your doctor refer you to such a place? (It sounds as if your current doctor is limited in understanding of neurological disorders--just doing the SPEP without doing an immunofixation electrophoresis to determine type of immunglobulins, not just quantitiative levels, for instance . . .)

I certainly support trying to as much nutrionally as possible, but I suspect that you may have an active disease process that needs to be addressed as well, and I recommend looking at the Liza Jane spreadsheets for the purpose of suggesting avenues for testing and tracking results over time:

www.lizajane.org
glenntaj is offline   Reply With QuoteReply With Quote