Hi Bryn and Grey,

We are loosely following a plan talked about a couple years ago that is actually becoming a reality and that is global patient communication and activisim with goals The first thing we need is an email list thru which to communicate and right now you can do that at
http://parkinsonscreativecollective.org/

Please go to the contact us page [link is at the bottom]. You are not formally joining anything - it's just to maintain communication. We are very busy editing and completing the book but feel that we could come together on skype for brainstorming soon [perhaps the end of the month]. We are thinking about having representatives from as many countries as possible and can dig deeper into the reasons for things like this sinemet shortage.

We also would like to have interviews from those who are working and/or researching for pd. Video ideas are limitless. Creative advocacy is an ongoing process. A brainstorming skype call is in order so while we are editing for book copy 2 , please give some thought to how we could best use our global resources.
More to come. Thank you!

http://parkinsonscreativecollective.org/contact.html