Thread: New.. Hello
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Old 10-09-2010, 11:21 AM
Tulips Tulips is offline
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Join Date: Oct 2010
Posts: 148
10 yr Member
Tulips Tulips is offline
Member
 
Join Date: Oct 2010
Posts: 148
10 yr Member
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Well that's the problem. In 2006 they said you need to be seen by neuromuscular cause o your twitching and cramps and spasms. So I did and if u see their notes they mention parathesia and mayalgias!!!

I really don't think they understand me or I don't explain well. I don't know
I tell them everything from sensory symptoms to cramps.

Doctor also thought Isaac syndrome but emg/ ncv and vgkc was normal. So this time I really forced this issue with stabbing and burning and he said sounds like sfn and let's do skin biopsy.

Been to 4 neurologist so far. This is the first guy at Baylor that says neuropathy.
He ran paraneoplastic panel and that was normal.

I don't know just feels like they don't listen. I have said so many time it was always sensory stuff then cramping and twitching happend.
I think along the line muncramping became so strong that that's what became the topic and confused doctors too.
Especially this flare cramping got web worse. Especially is ribs and back and stomach and can't sit
In a good position.
My spasms feel like pulling. I don't know if thats in neuropathy but I can feel a pulling sensation.

I think that's what the doctor one time said he is totally confused.. There are so Many symptoms

To me if a person has twitching sure they can have cramps or burning. It's all nerd related so why cant multiple thins happen.
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