Hi Dan!
I've had OMG for probably 8 years, but was just recently diagnosed and started on some treatment. My OMG was fairly stable for about 5 years, and then my double vision became much more of an issue after I had some unrelated surgery.

Although I do not have Type 2 Diabetes, I am considered "prediabetic", with an A1C of 6.3. There were concerns about starting me on prednisone, but I have done well on it so far. I'm on a high dose (now 60 mg/day) and am hoping to see a decrease or elimination of the double vision within a month. I monitor my blood sugars at home and they have been stable, on a strict diet (limit sugar and sodium).

Similar to Mike, I have had more energy while on the prednisone. I have been fortunate to not gain weight (yet) since starting the pred about 1 month ago. In fact, I've actually lost about 5 lbs, I think due to my better nutritional intake and increase in exercise.

It was hard for me to make the decision to use the prednisone. I tried Mestinon with a pretty limited response, and the double vision was really impacting my daily life. I'm still keeping my fingers crossed that I'll see a reponse from the prednisone. I'm not sure if it's more difficult to treat, the longer you've had it. My neuro felt that the treatment would not be successful unless the dose was 50-60 mg/day.

I hope your appointments go well and you get your questions answered.

Cate