Quote:
Originally Posted by echoes long ago
Lynn that is not a very detailed impression section on your emg/ncs. For instance mine states a severe large fiber axonal sensory motor peripheral neuropathy with demyelination. ASk the doctor that did it is it primalrily axonal with demyelination caused by degenerating axons or demelinating causing axonal damage by the degeneration of the myelin sheath.
I have no statistics but after years of reading posts i havent read of too many peripheral neuropathies with unknown cause getting better. it does happen though.
I have had PN specialists tell me what Mrs. D has written that the prognosis for chronic long term peripheral neuropathies is not good. Too much systemic long term damage to recover, even if the cause is ameliorated.
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Thanks Echoes Long Ago,
I know he did not give me much information on the report, I didn't know alot about PN when he told me. I have learned more on the forum. and plan on asking a lot more questions. I did ask him how bad the nerve damage is. All he said is that it is significant, because it's not just affecting the sensory nerves but also the motor nerves. That doesn't give me much to go on right now and I don't go back till July for another NCV. Why the long wait I'm not really sure.