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Old 10-10-2010, 08:07 AM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default ok so more specific right?

You all do think like we do. We are trying to finish the book so may i ask emails to communicate in that form until we are more freed up which is what we are aiming for ....to use the site to continue; then we want to set up a useful interactive site of just advocacy. Anyone else have ideas on how to get started quickly?



Quote:
Originally Posted by swept View Post
We can We are We will.Paula were already moving this forward,its championing,all that is PD from the patient perspective.Patient engagement was a much used term by many speakers of all representive groups patient and professional.How ? I feel strongly that it is up to us,local national global one and all.Lets do it now today,time is to precious to waste I live well with PD,I want the same and more for all,we need to engage a truley global PWP citizenship.
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"Time is not neutral for those who have pd or for those who will get it."
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