When I read your post, I was instantly struck that everything you were saying described my daughter's behavior to a T. We are just beginning to try to get a diagnosis. She has had a one hour EEG that turned out negative, but I know she did not repeat the behavior during the EEG. This all started about 8 months ago, and it has gradually gotten worse and worse. Sometimes it happens as often as 40 times in a half hour period, sometimes it doesn't happen at all or just a couple times. I cannot find any information on the internet. Have you gotten a diagnosis? I'd be really interested to hear mroe from you. Thanks.