Hi. I am so sorry you are going through this. I too just read a little on it. Have you had dx testing to see where this may be coming from? They suggest tests like CT etc. Also it says that it may go away on its own. I know it is so hard and I wish I could do more to help. I can relate to how loved ones do not understand sometimes. If you want a email buddy I am here to listen along with others I am sure. I agree with everyone to call your doctor too.