Hi, invisable -

As one of the "rares" but definitely no expert, it had to be tough to hear what that doc said.

Have to also admit confusion, but after almost a year from the onset, have to now believe that mine is caused by primary Sjogren's Syndrome that some of my docs have Dx'd and which isn't curable - so can't imagine that the neuropathy will ever leave. I just continue with the supplements and no Rx meds.

The burning has gotten much better (except face but not continuously) and no signs of length-dependent. Did have mild balance issues early on but not anymore, and only get a little dizzy once in awhile if I move or turn too fast. Muscle strength and gait remain very good.

Sorry I can't be of any help but will definitely ask the neuro I'm seeing on the
21st whether or not NLD SFN causes cell death.