[QUOTE=Tulips;704049]Hi invisible

Sorry you suffer like this too.

I have it with and without movement too.
I take baclofen as needed and 2 mg Valium for breakthru. I have tried lyrics and no help.

My emg clear and ncv clear except carpel tunnel.
Have you liked up Isaac syndrome and had blood done for it. Blood test is called volted gated potassium channel. Or vgkc.
I tested negative but it's a rare thing they don't check for.

I don't want to take these mess so scared of them !!
Do you have tremors internal like u are shaking but I have external
Now too. Especially if I get startled I shake internally. Another this is I am getting more of jerks
(myoclonus) I alway use to as falling asleep. U know like u fell when u falling asleep. But now if I just close my eyes and in not so falling asleep yet and something will jerk a bit. But at times when awake and sitting my leg ir angle will jerk a bit. Nit hard a bit.

So I feel some if it is like movent disorder. But all I these things overlap each other and one can have tremors in so many things that makes it so hard to diagnose.

I hate the spasms in my throat and constant state of tightness that when there it clicks and makes sound when I swallow .





No, I haven't been tested for Isaac Syn., I will request at next visit.
I did some reading on it, can't see any sensory symptoms involved though, only muscle.

You do seem to have many of the symptoms, but you tested neg, so can't be.

What about Myasthenia Gravis? Have you been checked for that?

Did you have a skin biopsy for small fiber neuropathy?

Internal tremor has been a secondary problem for me, no jerking though.........went to movement disorder specialist to check for Parkinson's......maybe another option for you to look into.

These are just suggestions, as I have been investigating all of this for a year and a half now, very frustrating to say the least.

Yes, you are right, many of these symptoms do overlap in various diseases.