I don't mean to sound foolish or quick to jump to conclusions, but believe me this has not been a quick jump.......one and a half years of searching and going through every test imaginable. The next one is scheduled for end of this month........skin biopsy. Should have had that one first! But Neuro. wanted to rule out "biggies" first.

Anyway........Tulips, I think this Isaacs Syndrome is definitely a possibility, you are right it can include sensory sensations.

The way I understand it, only 40% of people with it tests positive on VgKc test.

You follow every symptom to a tee, and I follow about 80% of them, with sensory being more than muscle in my case, which it says is possible.

I would think skin biopsy would be negative if Isaacs was the case.