View Single Post
Old 10-14-2010, 02:11 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Hi. I'm glad the surgery went well and that you don't have a malignant tumor.

Are you on Mestinon only or some other medications for MG? Any other meds for anything else?

What you describe, your eyes not "working together," is what happens in MG. There are a lot of muscles around the eyes and if they get weak to varying degrees, the muscles don't focus both eyes in the same way. That results in blurry or double vision. Is it better when you close one eye?

Do you feel dizzy or have any other symptoms?

It's possible that your MG is better. Did you have Acetylcholine antibodies? Have they rechecked them since surgery?

You have to let the experts figure this out. I hope that you will also see your neuro and talk about all this. They can't really tell how someone with MG is doing over the phone!

It would help to write down your symptoms and when they happen too. If you do get weaker, maybe you can take a smaller dose of Mestinon and see what happens. That way, you can figure out if it's the disease or the drug that is making your MG worse.

I hope you can figure all this out. It would be great if the thymectomy helped make you better. Still don't overdo things because the disease may get better but it doesn't disappear.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote