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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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Sorry to hear that you are still having problems with the study, Shayna!
I've heard that a few people have had delays but it truly should be very easy once the necessary parts are in place.
I think we should all remember that testing negative/positive only means that you tested negative/positive. We don't know how the JC virus is transmitted. We don't know where it comes from. One could test negative today and be exposed and be positive next week...no one knows yet. Hopefully, this study will lead to more answers.
As for being tired, I still have fatigue. It isn't as bad as it used to be but I still take provigil almost every day. I still have spasticity, even though it's not as bad as it used to be, I wear myself out every day because I have always done that, even now I don't listen to my body until I am screwing stuff up and figure out it's time to shut down and rest and I am not sure if that has anything to do with Tysabri or not. I think it's just me...
MS still sucks even though it's easier now than it was during serial relapses!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
. I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09 .
Negative for JC virus antibodies! .
I'm doing alright and making good grades,
The future's so bright, I gotta wear shades! .
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