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Old 10-15-2010, 12:37 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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The Acetycholine Receptor Antibody test is one of two basic MG tests, not treatments. It includes binding, modulating and blocking antibodies. Did no one do that test for you? What about the MuSK Antibody test? The fact that you don't know that makes me wonder about the care you are getting. That's the least a doctor can do to test you for MG.

Ocular MG can progress to generalized MG. There's no way to predict if or when that might happen. A thymectomy might help but, again, it's not a done deal to keep MG from progressing. So stay aware of how your muscles are doing!

You have the RIGHT to sit down with your neurologist to go over your situation. I hate when they act like they can't be bothered. I feel like saying, "I can't be bothered to pay your bill either."

I hope you don't get worse. I wish we would all get better.

Annie
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