Quote:
Originally Posted by smae
Are you asking if anyone has the autonomic symptoms, or the itching? Or both?
I have POTS (postural orthostatic tachycardia syndrome). A lot of doctors/websites say that it is a form of limited autonomic neuropathy. Some don't agree with that. I am on a medication to ease most of those symptoms--heart rate, blood pressure, etc. The thing that the medicine doesn't work for is the blood pooling in my legs and feet.
Is the itching directly on the soles of your feet? I ask because I have had some itching in my feet, but it is not really the soles. It's just a little bit deeper into my foot.. like it's just on the other side of my skin.. (If I could peel back the layer of skin that is my soles, that is directly where it feels like the itch is coming from--right beneath the surface of my soles).
So far I haven't found anything that makes that stop--but it also isn't a total constant thing.. so it's not too hard to just life with.
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I know, it is probably just one of the many things I need to learn to live with. My condition may actually include POTS. I also get the blood pooling in my feet and legs - sometimes worse than others. I have been diagnosed with SFN and do have some sensory problems. Bit, most of my problems are autonomic - just don't know specifically what it is (e.g., POTS). My neurologist was set to run autonomic tests but I could not go off of my meds because of my arthritis. He feels that the meds I take can hinder the results. He thought we can do the tests when I have a "really bad flare". Well, I hope I never get a "really bad flare" again, although I am sure it will happen again as some point. I do have autonomic problems - pretty much daily; gastroparesis and such. The itching is probably just part of it as it occurs when I have the tingling, etc.
Thanks for your help.