Yes, that must be soooooo frustrating. I am frustrated after only 1 1/2 yrs.

It is hard enough to deal with physical issues, but to not know what the cause is, is awful!

The truth is, I don't think the doctors can diagnosis with certainty in some rare cases. As in Isaacs, there really is no test that is 100%, a diganosis would be a guess.....

My Dr. said "Most people with abnormal sensations all over body, never get a diagnosis!!" He says he only sees people about once a year like me! How special I feel!!

I keep saying to myself......."It is better to have no answer, than to have a tragic diagnosis."